Culture Reviews

'UK AIDS Quilt' shown at Tate Modern 2025

The UK AIDS Quilt is a series of 42 large panels plus 23 smaller textile panels to commemorate over 380 people who dies of AIDS in the 1980’s and 1990’s. It was also designed to raise awareness of the ongoing AIDS pandemic.

Each panel is comprised of about 8 individual textile pieces. Each piece is made to remember someone. Friends and families have sewn and painted names, dates, images, symbols and words that reflect each person represented. There are a few famous names portrayed too including Bruce Chatwin, and Denholm Elliott. There are more details about each panel including the names of those who died on the UK AIDS Quilt website.

Shown together at the Tate Modern, the quilt brings a joyous clash of colours and styles – more outsider art than usually adorns the space. It is lying for a few days in the cavernous Turbine Hall, which easily swallows its length. Despite the Quilt’s size, it is only a small representation of the impact of lives lost in the AIDS pandemic in the 1980’s and 1990’s.

A lot has changed since the first case diagnosed in the USA (1981) and the UK (1982). This is thanks to effective testing, information about transmission, antiretroviral treatment, needle exchange programmes, blood product screening and treatment as pre-exposure prophylaxis with PrEP. For those in communities most challenged, there were often frequent, multiple reasons to grieve as thousands died. For more information about the shifts in infection rates, treatments and different demographics affected by HIV/AIDS, see AIDS Map.

My cousin was diagnosed with HIV in 1986, and eventually died ten years later. During the last weeks of his life, I began to understand the nature of the disease, as I sat at his bedside watching its cruel progress on his fragile body.

I now wish I had joined in this creative memorial act at the time and made an oblong of vibrant colours stitched to mark ‘Amaya Ben’s’ dance through life. I imagine how this might sit among the groovy cat and music lovers, the religious, the irreverent and uniquely personal representations that now tell an important piece of our collective cultural history.

To mourn losses old, new, and systemic, find Grief Tending workshops here, and for a space that is LGBTQIA+ focussed we also hold Grief Tending events at Queer Circle.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Molly Kochan is author of 'Screw Cancer: Becoming Whole' as in 'Dying for Sex' the podcast and TV Series.

‘Dying for Sex’ is a stunning podcast on Wondery. (The first four episodes are available to listen, but sign in to a free trial to hear the last three). It is raw, honest and funny. Molly Kochan and Nikki Boyer are best friends, and invite us into their revealing conversations.

Molly has Stage IV breast cancer, has just left her husband and is on a mission to find out what she likes sexually. On the way, she begins to reclaim her sensuality after a history of abusive relationships. It sounds like a drama, but it is just two friends chatting about life.

Molly’s sexploits are fun, but the intimacy of her relationship with Nikki sucks the listener into a more real, deep and meaningful conversation about sex, death, love and friendship. It made me laugh, and cry, as we hear Molly, and picture her through the lens of Nikki’s loving encouragement.

‘Screw Cancer; Becoming Whole’ is a short book by Molly Kochan. Finished in hospital, Molly is writing the completion of her journey to heal and grow around her childhood trauma. The urgency with which she is writing gives another window into her story, but it lacks the warmth and humour that Nikki brings into the dynamic between them in the podcast.

The ‘Dying for Sex’ TV series takes the bones of the podcast, and some of the themes in the book to create a drama inspired by real events. It takes Molly’s experience of relationships after a Cancer diagnosis and develops them into a credible script. Playing with the details that are shared in the book and podcast, the series takes the central premise and creates a hugely entertaining drama. It is both funny and moving as it challenges the viewer’s perception of how someone with Stage IV cancer should behave.

I love the way love and loss entwine in the narrative. Molly’s story is both tender and real, portraying sexual intimacy. The themes of both sex and death are explored with a refreshing openness, and humour.

Laughter in distressing circumstances is often a much-needed valve when someone is grieving. How to have fun and experience pleasure is also an important ingredient in end-of-life care, that may be unexpressed by someone with a life-limiting condition, or overlooked by care-givers. Take heed, it is never too late to try something new, or ask for what you desire.

For Grief Tending workshops that honour both love and loss as interconnected, see here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Still from the documentary film 'A New Kind of Wilderness.

‘A New Kind of Wilderness’ is a tender and moving documentary. It follows a family dealing with change in the wake of loss. Nik and Maria are re-wilding their family, and have chosen a self-sufficient life-style in Norway and home-schooling for the three youngest children. But when Maria dies, Nik is left dealing with the fallout of grief. We witness each member of the family struggle with Maria’s absence.

Director Silje Evensmo Jacobsen took inspiration from the images of Maria Vatne, whose death happens before ‘A New Kind of Wilderness’ begins; and yet Maria’s words create the context for the drama that unfolds.

There are interconnected consequences of Maria’s death – many ‘secondary losses’ that impact the family. We see Nik struggling with complex decisions, and the loss of a shared future dream.  They hoped to raise the children wild and free, to understand the life cycle of plants and animals, and our relationship with them.

The narrative is seeped in the beauty of a life lived in close connection with nature. It also portrays the paradoxes of modernity. We watch Nik grapple with how to earn a living, educate children and grow food solo.

Squeezed by financial necessities and an external pressure from others to ‘move on’ from grief, the siblings and father each have their own issues. The camera catches the many faces of their emotions, through body language and touching exchanges. It made me cry at unexpected moments.

We are offered glimpses into the private world of the family at a vulnerable time where cameras would not usually be invited. Time passes, and through small rituals, we watch them grow through grief. Moments tinged with happy/sad draw the viewer into the intimacy of their family life. Their story touched me, as we watch them begin to ‘build a future’.

‘A New Kind of Wilderness’ is a beautiful story about the upheaval that death may bring, and of resources and challenges arising in response. It reminds me that we can adapt and that through navigating change, we grow more resilient.

For an article about the themes of love, loss and belonging in the film, see here.

If the themes in this film affect you, you can find Grief Tending workshops in London and online here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Author wearing a necklace that relates to the theme of expressing feelings and using words to write about them

‘Can We Write About This? Men, Sex and Feelings’ is a podcast by Tony Pletts, featuring fizzing conversations with two brilliant writers and me.

The podcast has come out of the book Tony has written about the loving journey of our relationship, together and into consensual non-monogamy with others. The book hasn’t been published…yet. Taking his manuscript into the world has opened up a broader enquiry about why men have been reluctant to write about their personal sexual experiences and vulnerabilities, and if there is an appetite for them be published at all.

The conversations Tony has with Lucy-Anne Holmes and Monique Roffey are intelligent, provocative and fun. There’s an interview with me too if you want to hear more about what it’s like to be physically and emotionally exposed in thousands of words.

It is Tony’s honest self-reflection that makes his writing different from the bombastic hero we have come to recognise as the unreconstructed Hollywood portrayal of men’s sexuality. Tony and I make many mistakes, and he is willing to reveal our faltering steps and stumbles into emotional quick sands. Amid the steamy explicit descriptions of sex, his book is about learning by getting things wrong. Tony shows us what it is like inside his perception, and it is refreshing to hear about his awkward mis-steps. For me, he typifies ‘Daring Greatly’ (Theodore Roosevelt) via Brené Brown.

“If we are going to find our way out of shame and back to each other, vulnerability is the path and courage is the light. To set down those lists of ‘what we’re supposed to be’ is brave. To love ourselves and support each other in the process of becoming real is perhaps the greatest single act of daring greatly.” Brené Brown

I hope what Tony’s brave revelations will do is open more conversations, inspire people to acknowledge their true longings, encourage people to negotiate the shape of relationship that meets their needs, and allow others to connect with their feelings and their voice.

There’s more information about the podcast here, and You can find a link and listen to it here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Image from the exhibition reviewed in the text

Imagine a streetscape the size of a doll’s house. In ‘Journeys from an Absent Present to a Lost Past’ an exhibition at Fabrica, in Brighton, Mohamed Hafez has crafted beautiful miniature installations, that transport the viewer to an urban Syrian landscape. Each tiny environment shows everyday traces of local life. Washing hangs in the street, a car is parked outside a front door, a satellite dish rusts on the roof.

Mohamed Hafez, Syrian born architect and artist living in the USA, began making model environments to soothe his homesickness. First because of a post 9/11 travel ban, and then as a result of the war in Syria, he is no longer able to go back to the home that he remembers. He recreates the Damascus of his memories. “There’s always that emotional longing to go home,” he says.

Understanding the power of art to both express and work with the grief of loss, Hafez makes meaning by communicating something of the migrant experience. Speaking in a short film that accompanies the exhibition, Hafez reminds us “that life is fragile”. Hafez wants to capture our attention with his exquisite model images, “I like to be sneaky, because you know, that’s how crises happen in our lives. They sneak up on us.”

I recall there have been three brief moments in my life so far, when I faced the possibility of losing my home, but I have never had to confront losing my homeland. For me, contemplating this surfaces empathy for those who are in more precarious situations.

In Syria, crisis is ongoing. These tiny fragments of old Damascus streets invite us to see a knotted global issue from ‘another’s shoes’.  An interactive element of the exhibition invites visitors to consider ‘What is home to you?’ I am aware that it is often only away from home that we really come to know the answer. I think of the familiar smell of Hackney’s green and grime that greets me after time elsewhere.

See here for next Grief Tending events.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Still from an installation in the exhibition described in this review

Every Ocean Hughes is an artist and death doula. An end of life death doula or ‘soul midwife’, is someone who supports the dying and their loved ones, at the end of life. Hughes exhibition ‘One Big Bag’at Studio Voltaire includes a film of a performance piece, and an installation of her ‘corpse kit’. This comprises an array of small practical items including gloves, bells, make-up, cotton buds, scented oils and a nappy, which hang on strings in the darkened room. These are some of the tools of the doula’s trade. This is Hughes’ bag of items that may be needed at the end of life to support those at the bedside, and to minister to the dying, both before and after their last breath.

The film, which extends the theme of doula-ship is provocative. While the words raise important themes around the ability to ‘self-determine’ around death, and queer bodies in particular, it hammered out its message without the subtlety required for this much needed public conversation. Hughes intends to address the audience’s fear of death and dying, but for me, the percussive choreography was unhelpful.

The confrontational delivery of the words, whose message deserves to be heard, is at odds with the sensitive art of “walking alongside, and being responsive to the dying”, as doula Hermione Elliot of Living Well Dying Well puts it in an interview on BBC Radio 4’s Woman’s Hour.

Also in this interview, Dr Helen Frisby describes the changes that have occurred in recent times as end of life care has become increasingly medicalised, and death the domain of the undertaking business. Every Ocean Hughes describes the laying out of the body as “the most loving thing you can do”. This task, once carried out by local women can be reclaimed when we are informed and empowered to take on the task. I have been lucky enough to lay out bodies during the extraordinary time of transition that occurs after death.

“Death has to be understood with the senses, the mind doesn’t get it,” Hughes tells us, and my hands remember. The intimacy of the doula’s role in the liminal days around a death are described beautifully, “The rest of the world is out there happening, but we’re in time apart.”

Despite its heavy-handed approach, I hope the exhibition will inspire necessary conversations. Hughes urges, “Make some decisions, have a vision…so that your life can end with the same spirit it was lived.” For some help to do this, Beyond Life has some useful tips, and Ash Hayhurst’s PDF ‘Making Informed Choices When Planning a Funeral – A Guide for Queer People’ is an excellent resource.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

My spine is tingling as I watch ten performers solemnly walk along the path towards me, in Kensal Green Cemetery. They move at funeral pace, each holding a grief object, in a ritual procession of remembrance. I am here to support an intention to hold death in my awareness along with these non-professional dancers who, all over 60 are themselves turning towards mortality.

Along with singing and making music together, dance is one of our oldest and most universal human activities. In this time, this mode of expression is often side-lined as a pastime of the young or drunk. My winding and sensuous dances keep my ageing body moving, but also allow my soul to connect with others. One of the advantages of age for me, is a letting go of inhibitions – to be less self-conscious about my image in others’ eyes. We bumped into a friend on the way to the cemetery by chance, who told us that dancing in community was what sustained their parents (now late 70’s).

Rose Rouse – a passionate dancer and advocate for the ‘Advantages of Age’ was the instigator of ‘Dance Me to Death’. She met Rhys Dennis and Waddah Sinada of Fubunation – young dancers who are exploring black masculinity in their choreography, encouraging diverse collaborations and audiences. Rose was excited by Rhys and Waddah’s work. But, in order to make this intergenerational project happen said, “I had to persuade them to do this project with me.” They said “Yes”, and the project emerged as a collaboration – devising, dancing and exploring their experiences around death and grief. The outcome is a performance, photographs, and documentary film in the making.

The cemetery is a beautiful backdrop of caryatids, columns, and tombs surrounded by trees, and just enough wildness. Reminiscent of the angels that reach out to one another from the top of one mausoleum, the dancers stretch and connect. As the dancers claim the grand steps of one chapel they move,  dancing with the edges between life and death. Cello and percussion accompany their coming together in group pieces and duets that are tender with moments of surprising energy.

Informed by mortality, and the uncertainty of Covid rules and weather, this nod to death felt like an achievement against the odds, and a celebration of life.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Image from the project 'This Grief Thing' reviewed in text.

Sam Butler and David Harradine of ‘Fevered Sleep’ have devised and produced ‘This Grief Thing’

This Grief Thing is a project that encourages people to think, talk and learn about grief.”

Their billboard caught my eye last week as I walked along Dalston Lane. They have curated a number of talks on grief themes, as well as other projects that stir people to engage with the theme.

Tony and I visited their market stall in Brick Lane where Julie, Sam and David folded T shirts and sweltered in the heat like all the other market traders. Poised for spontaneous interactions, the presence of the stall caught the eye of people walking past. As people browsed hoodies and T shirts, conversations were encouraged with the curious. I remembered my days on the Narrow Way initiating random conversations with strangers in the Hackney is Friendly project.

The market stall is full of merchandise designed to open conversations with ordinary people to normalise talking about loss. Brilliant and simple, their slogans champion a way to engage with someone who may feel ill-equipped to mourn, or to respond to someone who is grieving.

“Don’t panic if I cry,” printed on a red T-shirt particularly appealed to me. We left with “Let me be sad” badges, and some other swag. I shall wear them, ready to see what communication it provokes, hoping to spread their mission of everyday encounters that unlock the taboo around the subject of grief.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

Despite his fresh-faced boyish looks, Sam Lee’s album, ‘Old Wow’ digs deep into oral folk music traditions with the wisdom of an old soul. I am a funk music fan. Folk is out of my comfort zone, but I am lured in by the meanings of words that ache with melancholy, and the bass lines that creep along in tracks like ‘Lay This Body Down’.

He offers a brilliant synthesis of old and new. He uses or re-imagines folk songs learned from singers of disappearing oral traditions. He arranges modern fusions to bring these songs to new ears – using an eclectic mix, which includes double bass, piano, percussion, guitar and violin. The arrangements come alive, full of sorrow and the beauty of nature.

‘Soul Cake’ begins with three verses of ‘Green Grow the Rushes O’ – a folk song, which goes back centuries, weaving astrological and Christian symbolism inextricably together. I sat as a small child next to my mother on the piano stool, enjoying the oral yoga of singing its ‘jibberish’. Now, the poetic lines hang between my ears. Lee has re-written this as a foray into mortality. Symbols from the original build into a counting song that describes the circle of life. Lee winds folk poetry with the harmonies of grief. ‘Old Wow’ reminds me of the magic of Scott Walker’s haunting lyrics, served with an inducement to love life.

Watching him perform at the Medicine Festival was stirring. He orchestrated the crowd to sing a powerful nine-part lament. I was moved as we sang a Requiem for nine recently extinct species: the Pyrenean Brown Bear, Passenger Pigeon, Eurasian Wolf, Rita’s Island Lizard, Large Blue Butterfly, Bermuda Night Heron, Eskimo Curlew, Silver Trout, and Charles Island Tortoise. In his own words, Sam Lee aims to create: “a timeless bridge, music that can be looking both backward and forwards, and a soulful accompaniment to an urgent need to fall back in love with nature if we are to know how to protect it”.

‘Honeyland’ is an extraordinary portrait of  Hatidze Muratova, a woman keeping wild bees using traditional methods. The story which unfolds, came about as the film-makers Tamara Kotevska and Ljubomire Stefanov, were filming in Northern Macedonia, and met the bee keeper. Unusually, the film was Oscar nominated for both ‘best documentary’ and ‘best international feature’. It is visually stunning. Gold light pours like honey through the film, as we step into the bee keeper’s domain.

Much like the narrative of the film, it is long, slow and painful. The old ways meet the contradictory demands of modern poverty, played out through the interactions between Muratova, and the family who move in next door.

At the Medicine Festival, I made a bee line to hear some of the barefoot hive philosophy of Chris Park. He is a very unassuming Dad, beekeeper, Druid, and storyteller. He spoke of ancient lore from a time when Britain was known as ‘The Honey Isle’. As he spoke, he invited us to roll words around our mouths with him, to hear the etymology of bee keeping. It was as though we were sipping linguistic mead or metheglin (mead brewed with herbs or spices). He spoke of the three medicines in Druid philosophy – water, honey and labour. Like the finest pollen taken from bee legs, unadulterated, he is the bees knees.