Articles

I recovered from Chronic Fatigue Syndrome

In Chronic Fatigue Syndrome there are broad similarities in its expression in different people, and there are unique circumstances that mean each healing journey of recovery will be unique. I recovered after eight years struggling with CFS/ME. It was a profound and transformative part of my life, although it didn’t feel like it at the time. I am writing about my recovery in the hope that it may inspire others to find their way out of the maze. This article is based on my own experience and understanding. Theories of recovery are constantly changing and new protocols being developed.

A Network of Resources

As a Grief Tender, I bring my understanding of working with all forms of loss. The first step with Chronic Fatigue Syndrome, as in Grief Tending work, is to find a network of resources, to anchor in things that inspire and support us. This may be values, faith, the more than human world, something greater than me, people I trust, a place that makes me feel good.

As a Grief Tender, I bring my understanding of working with all forms of loss. The first step with Chronic Fatigue Syndrome, as in Grief Tending work is to find a network of resources, to anchor in things that inspire and support us. This may be values, faith, the more than human world, something greater than me, people I trust, a place that makes me feel good.

As a Grief Tender, I bring my understanding of working with all forms of loss. The first step with Chronic Fatigue Syndrome, as in Grief Tending work is to find a network of resources, to anchor in things that inspire and support us. This may be values, faith, the more than human world, something greater than me, people I trust, a place that makes me feel good. Friends often fall away when we become ill, so it can be important to look for new avenues of support.

What supports you?

  • People/animals
  • Practices/activities
  • Places/nature
  • Something greater than me
  • Self-compassion

“Move away from the bad stuff, move towards the good stuff.” RD

Worlds of pain and joy

A wise young friend of mine has found her own way to improve her mental health using this principle. I like the way she encapsulates worlds of pain and joy in this concise phrase. “Move away from the bad stuff, move towards the good stuff.”

The problem I had in putting this into action, was my inability to distinguish what was doing me harm, and what was beneficial to me. Some of the things I was doing, that I thought were doing me good – like sleeping during the day, wern’t always helpful. When I experimented with changing my activity instead of sleeping, it helped me to recognise whether I needed sleep, or whether I was using sleep to numb out.

Recovery from Chronic Fatigue Syndrome is a jigsaw puzzle and each person will need to explore which things in their lives are the bad stuff, and pursue a subtle path to uncover the good things too. There isn’t a universal set of instructions to figure it out. Learning to use mindfulness can be helpful in learning to notice and monitor our internal and external responses to external situations.

‘Life’s Energy Equation’

I find Dr Sarah Myhill’s basic protocol a very helpful frame to understand how to shift to a more balanced energy account. ‘Life’s Energy Equation’ as she describes it includes a leaky bucket on one side and fuel on the other. The leak in the bucket needs to be repaired, before adding fuel. In simple terms, the leak in the bucket is often the underlying emotional healing that is needed, and the creation of firm boundaries, so that our energy is not syphoned off to others. Until addressing the hole or holes in our system that lets energy flow out, anything else we do will be symptom management, rather than adding beneficial fuel.

Using the lens of balance can give a helpful overview to untangle the places where we may be losing energy, and the areas which need more good quality input or fuel.

Loss of Energy

  • What are the activities and people which deplete my energy?
  • What do I carry for others that is not mine, including from ancestral lines?
  • What do I take on that I don’t need to?
  • What do I need to let go of?
  • How do I drive myself?
  • What drives me?

 

Energy Credits

  • What nourishes me – activities, practices, people, places, sleep and food?
  • How do I find support?
  • What brings me fun, pleasure, joy?
  • What sustains and grows me?
  • What is missing that I need to find?

Healing the past

For me, repairing my energy bucket meant addressing some of the causes of emotional distress from childhood. I was lucky enough to discover an early Mickel Therapy protocol, and worked with a Mickel therapist and using elements of Reverse Therapy to address some of the traumatic events in my history. We worked somatically as I unravelled some of the developmental trauma and neglect from my childhood that I had explored previously in talk therapy, but not experientially through the body. Transforming Touch is a touch based practice (either in person or online) that I have also received which helps to regulate the nervous system and promote healing.

Repairing the body/mind split

Working with a somatic therapist also helped me to notice and prioritise the messages, requests and emergency signals that my body had been frantically trying to communicate to my cognitive awareness. These simple but essential signals had previously been ignored by my busy and capable mind. Pausing and developing mindfulness are simple ways to begin noticing what’s going on inside ourselves.

I discovered that I had been making logical but erroneous decisions about my wellbeing. I began to go to the toilet as soon as I registered the signal for a full bladder. I re-trained my mind to spot and respond to my body’s needs. I learned to notice how I was feeling physically and emotionally. I began to come down to earth.

Bridging the body/mind gap gradually builds trust so that the body’s emergency alert system calms. This creates a positive feedback loop. This and other ways to calm the nervous system are necessary to develop a more balanced, flexible ground state of being. This can be particularly hard when external pressures demand our attention, time, and energy, or add stresses without our consent.

Self-Care is a radical tool

I used to be too kind. I had a tendency to be co-dependent. I had responsibilities to a child, a partner, and a disabled parent. For the first time in my life I learned that my self-care was essential if I was going to be able to offer any support to the people around me. Boundaries were a new concept for me. I began to discover what I needed, what I enjoyed, what the post CFS/ME version of me might want to be. I learned how to make boundaries even with the people around me who had genuine needs. It may sound easy, or glib, but this took the most epic transformation. I needed to learn that I could only support others from a place of surplus.

‘What feels good to my body?’ This is a great question, and a whole field of enquiry. Physical touch is often one way to experience pleasure in our bodies. A good bodyworker is one way to find the tender care we may long for if we have the resources. It can also help us to map and connect our inner experience in the body. Massage is a tool that can also help us to access feeling, soothe, and find support. Self-massage or swapping a shoulder rub with a friend is one way to access positive touch.

With a ‘Healthy Human Culture’ lens

With her excellent ‘Healthy Human Culture’ frame, Sophy Banks’ zooms out the view of burnout. She has helped me to understand how a system (whether it is a body, an organisation, or a culture) becomes organised by trauma, and how to create return paths back to a regulated, regenerative, sustainable pattern. It can be particularly hard to discover sustaining patterns of health, and dealing with our pain in a culture that doesn’t value the wellbeing of all.

“I see that “burnout” is a worldwide condition of modern culture – globalised industrialisation and consumerism are rooted in extraction, disposability and accelerating speed, called growth. The same patterns of extracting from a system more quickly than it can replenish can also apply to groups or individuals – and sometimes we’re doing it to ourselves.” Sophy Banks

Finding ways to express emotions

Post Chronic Fatigue Syndrome, I have become a Grief Tender, and have developed tools to access, process and express emotions. My understanding of grief includes a wide range of feelings including anger, fear, numbness, despair and relief as well as sadness. These (and many others) are natural responses to many different kinds of life events and situations, including loss, absence, longing, change and bereavement. Emotional flexibility is key to mind/body health.

Learning to access anger

I was socialised female, in a family that didn’t express much anger. I didn’t have role models or tools to find healthy expressions of injustice and frustration. Learning to be angry was part of my recovery. Taking the lid of emotions, and anger in particular, can open up energy that has been tied up in staying small, nice and safe. Grief Tending is a way to surface and express feelings in a context where people are held by the container of a supportive group.

There are many different routes and pathways for working with trauma in relation to patterns of ill health. It’s important to find ways that work for you to:

  • Find support
  • Recognise and process past hurt, loss, absences and longings
  • Learn how to notice, recognise, experience and express current feelings
  • Find new ways to discover what you love and enjoy

Good Fuel

Good nutrition is part of moving towards the ‘good stuff’. It might be a really important part of your plan for recovery. I am also wary of the many ways people with Chronic Fatigue Syndrome can be willing to try anything to recover. This often includes a lot of expensive supplements or healing modalities. Keep following your gut instincts. This might be exactly what you need, but remember fuel will only feed you once you have started work on repairing the holes in your bucket.

One of the foundation practices of my own recovery was to go for a walk in the park. It is free. I enjoy it. It connects me with nature. Decades on, it is still one of the most important things in my life. It is a life-affirming, health-giving part of my essential self-care practice.

Recovery is scary

As my health started to improve, I was able to do more, but there was a persistent anxiety. I didn’t want to return to the darkness of chronic illness. A return to health is also often a bumpy journey with ups, downs and plateaux. As my immune system re-balanced I had a series of dental abscesses. I am still sensitive around chemical perfumes. Learning to trust and love my body was a process. I continue to take very good care of myself, and I’m probably fitter now than I’ve ever been.

“We, all of us, are learning to be here now, experience sensation, notice, and come to understand that we are worthy, that there is nothing to do, and that our bodies are glorious.” Max Mora

What I love and what sustains me

I found Betty Martin’s ‘Wheel of Consent’ another brilliant tool to help me get clear about boundaries with other people, and figure out what I wanted, and what I was tolerating. It is a practice that’s easy to learn, and starts as a touch practice, but can be applied to any aspect of life where we might give, take, receive or allow.

Along with walking, I discovered what I love and what sustains me – dancing, Pilates, feeding birds, meditating, sewing and drawing. I changed my lifestyle and found ways to express my sexuality. I started learning about grief, and changed my working life. In fact, having been through Chronic Fatigue Syndrome was an essential part of the learning that inspired me to become a Grief Tender and support others who are struggling with life’s challenges. By digging deep into my own journey into the underworld, I found gold.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

See previous post: ‘Chronic Fatigue Syndrome and Grief’

Support Links:

If you are experiencing the symptoms of CFS/ME, consult your doctor to register the onset of symptoms and check for any other possible causes.

Dr Sarah Myhill’s ‘Life Energy Equation’ Protocol

Sophy Banks ‘Burnout or Balance’

Healthy Human Culture

CODA Codependents Anonymous

Mindfulness

Mickel Therapy

Reverse Therapy

Transforming Touch

Introduction to Betty Martin’s ‘Wheel of Consent’

Action for ME

ME Association

Integrated Somatics

Max Mora and Sarah Pletts on ‘Working with Grief in the Body’

Self-Compassion

The actual blanket that is described in the text.

Looking back at Chronic Fatigue Syndrome

It is hard to describe the experience of having CFS after having recovered. Partly because having it was monotonous, relentless and difficult. Like many challenging experiences, our brains store these memories in a different way to the happy stories. For me, as with many others CFS brings poor memory and brain function as part of the symptom picture too. I chatted with JA, who has also recovered about how it was for them, and include some of their quotes in this article.

“Every bone and joint in my body hurt, and I didn’t have the energy to get up and go to the loo.” JA

What I expected but did not receive

I lost my thirties to CFS, at the time I expected to be building a career, and having children. This is an example of Francis Weller’s second Gate of Grief – ‘what I expected but did not receive’. Instead, I was lying motionless on a sofa, sometimes listening to classic audio books from the library, and staring at the blanket over my legs. I didn’t have the concentration to read. Music felt overpowering as if I had no skin. Chatting to others was exhausting.

Living in slow motion

My enduring memory of the experience was of watching the colours in the blanket. The light and shade in the room moved around like a sun dial, illuminating different colours and textures in the room. It was as though I was living in slow motion, my view of the world shrunk to the things I could see from the sofa.

“When I had CFS/ME, everything I thought was important got stripped away, so you get to find out what’s absolutely necessary.” JA

The symptoms of Chronic Fatigue Syndrome

Fatigue is usually the predominant symptom of Chronic Fatigue Syndrome. It is not the kind of tiredness that comes at the end of a busy day, or after exertion. It is a deep, incapacitating, immobilising sensation where limbs feel as heavy as lead, and any activity is a huge effort. If you have experienced CFS, you will probably also have experienced well-meaning friends saying, “I feel really tired too.” It really isn’t every day ordinary tiredness.

These are the main symptoms that may be present in this debilitating chronic condition, although others may be part of the picture too. A range of symptoms must persist for over six months, and exclude other illnesses to secure a diagnosis of Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME).

  • Extreme tiredness, especially after physical or mental activity
  • Brain fog, and memory problems
  • Dizziness, sore throat, headaches
  • Muscle weakness (and for some muscle and joint pain or fibromyalgia)
  • Disrupted sleep patterns, and waking tired after sleeping

My experience of Chronic Fatigue Syndrome

I felt ancient. I noticed octogenarians who were moving at my new pace; invisible and over-taken on the pavement by the able-bodied young. Any energy I had was used up doing essential tasks and trying to manage my limited energy.

“I tried everything, which drained my resources financially and energetically.” JA

I was lucky. I had a supportive partner. We had enough resources to survive. I could put my attention on trying to understand Chronic Fatigue Syndrome and work out how to improve my health. In those days there wasn’t much support available. CFS was also stigmatised by many who saw sufferers as malingerers or wrote it off as depression. My experience was relatively mild for most of the years I was affected. I had several periods where I was sofa-ridden for a few months at a time, and gradually recovered with brief relapses. Some people are very severely affected and need personal care.

An alchemical transformation

I am not a fan of ungrounded positive thinking, and blaming people for their choices, for creating their Chronic Fatigue Syndrome. It was, however, a learning process for me. Looking back at my eight years of debilitating symptoms, I see it as an alchemical process. I was tempered in the crucible of Chronic Fatigue, which transformed me into the person I have become. It’s hard to quantify the changes in me; I felt like I had been on a meditation retreat for eight years. It wasn’t easy. It involved a rigorous examination of every aspect of my life, changes in how I thought, felt, behaved and related.

“I felt like a reverse sleeping beauty and woke up 9 years later, 9 years older.” JA

Chronic Fatigue Syndrome and grief

From my subjective vantage point I want to share some of my observations about my experience of Chronic Fatigue Syndrome, and recovery from it. Since becoming well, I have become a Grief Tender. The more I learn about grief and the grieving process, the more I see some external parallels between grief and burnout/CFS. Although the experience of CFS is predominantly physical collapse, and grief is more emotional although there are impacts on the body too.

With both Chronic Fatigue Syndrome and complicated or prolonged grief, there are some commonalities before, during and after the onset of symptoms or the impact of grief. These include:

  • Pre-existing loading that underlies the onset of CFS/grief
  • During the experience of CFS/grief the symptoms are broad – affecting the whole mind/body system
  • The context and life situation around the person experiencing CFS/grief are important factors
  • Secondary losses that happen as a result of or after the onset of CFC/grief
  • Routes to recovery, moving through CFS/grief are life-changing experiences
  • Recovery will involve growing a new life as part of our unique journey around, through and beyond CFS/grief

The conditions or loading preceding CFS/grief

My understanding and experience of developing CFS was that it was preceded by a ‘loading’ of different physical, emotional, mental and spiritual causes. My mind/body system was trying to deal with more than it could handle.

In my case this included some developmental trauma from unresolved childhood issues, becoming a new step-parent of a very active child, moving house, getting married, working erratically as a freelancer (feast or famine), some digestive issues, poor blood sugar management, being an only child of a parent with a mental health diagnosis, and then a series of infections on top – chickenpox, Hepatitis A, then flu. Although it felt like a normal but chaotic set of circumstances, my system was overloaded and suddenly crashed.

Emotional triggers causing physiological effects

There were many factors in the mix that it took me years to unravel. Adrenal burnout was certainly part of my physiological cocktail. My system was simultaneously on emergency alert, (adrenalin rushes, muscles tensed unable to switch off, digestion suspended), and with an emergency braking mechanism also on, causing more of a freeze response. With the help of a Mickel therapist, (thank you Jane Orton) I began the detective work of seeing my emotional triggers that were causing physiological effects. And my physical symptoms were very real. I also needed to understand nervous system states, and learn tools for self and co-regulation.

“The worst thing about having CFS/ME is not knowing how long it is going to last.” JA

Secondary losses caused by illness/grief

As in someone’s personal grief landscape, the circumstances in the build-up, the particular symptom picture during, and the context it happens in are all relevant. The consequences or secondary losses will also be part of the unique picture of someone’s life. The inner and outer resources, as well as the support systems available will also impact someone’s ability to recover, and at what pace. People have the freedom to make their own choices, but they are also subject to their particular environment, and luck.

“There are very real mental health issues of having CFS, of being in this for so long.” JA

In Grief Tending workshops, I often remind people of the many different influences on their circumstances – which may include culture, faith, class, gendered socialisation, health, neurological wiring, sexuality, trauma history, wealth, family or lack of it, and ancestral histories to name a few. The impacts that land in these terrains create a unique set of circumstances in each of us.

Processing Grief

Processing grief may be an important part of a recovery plan from CFS. There are often pre-existing grief loads from the time before CFS. Then there is always the grief of what has been lost, missed, longed for, and the pain carried since having CFS. As well as the lost hopes and dreams of our imagined futures, there are often lost opportunities, lost friendships, lost identities, reduced resources, and lost time spent with our loved ones.

There are different kinds of chronic energy collapse including Long Covid, Autistic burnout, work burnout, Post Viral Syndrome, and Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis. There can be varying symptoms, durations and overlapping syndromes between them. There may be one apparent cause, although that may just be ‘the straw that broke the camel’s back’. I’m not a medical professional and there are still many competing theories and perspectives on both cause and cure. Grief in its widest sense may be one of many contributing factors. And where there is chronic illness, which precipitates other losses, grief is usually part of the whole picture. All the things that have been lost as a result of any chronic condition, as well as anticipatory grief/anxiety for what is still to come.

“You don’t understand what it’s like unless you’ve been through it.” JA

Grieving Together

Chronic Fatigue Syndrome is a lonely journey. Finding spaces where it is possible to be part of a group experience, while taking care of our needs can be problematic. Finding connection while navigating chronic illness is often beyond our capacity.

Many people who are sick approach our Grief Tending workshops with trepidation, but find them a useful place to connect with others who are going through life-changing circumstances and learning how to be with life’s desperate times and conditions that are so often isolating.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

See article on ‘Recovery from Chronic Fatigue Syndrome’

Support Links:

If you are experiencing the symptoms of CFS/ME, consult your doctor to register the onset of symptoms and check for any other possible causes.

NHS Chronic Fatigue Symptoms
ME Association

 

 

 

A Training in Grief Tending

The ‘Apprenticing to Grief’ programme is a training in Grief Tending. It is a short, deep immersion into the practice of facilitating groups through grief. On the training we teach how to lead a tried and tested guided journey for people who are experiencing grief. Students are given tools to work with ritual, and somatic practices which encourage people’s ability to anchor in resource, surface feelings, express in different ways, and regulate their nervous systems.

“Powerful group work and processes for tending grief with integrity and tenderness. Transformational work needed for today.” Former participant

 

The Teachers of Grief Tending

Building on the teachings of Sobonfu and Malidoma Somé, Francis Weller, Joanna Macy, Martin Prechtel, this lineage was orginally woven by Maeve Gavin, and has been carried forward by Sophy Banks and Jeremy Thres. The current form of this Grief Tending training was crafted by Sophy Banks and evolved by the team, who each bring their own wisdom and experience to ‘Apprenticing to Grief’. Ultimately, it is grief who is the teacher, and brings us to work with the medicine of Grief Tending.

 

Learning Modules

This Grief Tending training includes learning modules on:

  • The shape of a Grief Tending event
  • Holding ceremony and ritual
  • Safety and ethics
  • Facilitating groups
  • Holding space for grief in different contexts

 

Embodied and Experiential Learning

The design of the training emphasises embodied and experiential learning. The structure of the programme includes the opportunity to practice facilitating part of a Grief Tending journey with encouragement and supportive reflections from the group. Participants gain a clear understanding of the Grief Tending form, the skills needed, and a practical understanding of their strengths in relation to this work.

 

Roles Explored on the Training

Through the brilliant design of the ‘Apprenticing to Grief’ training, students work on multiple levels to gain understanding. We use the metaphor of ‘hats’ to differentiate between role switches, such as:

  • Participant – in my own grief process
  • Apprentice – learning about Grief Tending
  • Facilitator – delivering content and holding space
  • Meta – looking at the meta-perspective

 

Welcoming Diversity

In our Grief Tending training, we invite students to explore and expand their capacity to hold space for grief. This includes an understanding of facilitating across difference. We welcome participants from diverse backgrounds. This is reflected in the sliding scale of fees, and application process.

 

Who Trains as a Grief Tender?

People approach our Grief Tending training from a wide variety of backgrounds. Some may already be a helping professional, or working alongside vulnerable people. Some may have a strong spiritual or nature connection practice. Others may be stepping toward holding space for grief from a background in the arts or activism. Sometimes people already teach or facilitate groups, while others may be doulas or work with the bereaved. We aim not to exclude those who have relevant life experience; but may not have any therapeutic qualifications.

 

Gain Confidence and Knowledge

As a consequence of this broad mix, ‘Apprenticing to Grief’ is not a complete training. People come with such a wide variety of expertise, ages, and experience. After this intense, brief course, as well as gaining confidence and knowledge, students will also identify areas in which they may need further development or study.

 

Our Network of Apprentices

Although it is widely practiced, Grief Tending does not currently have a registration body. It often takes place in grassroots communities. The training provides a strong grounding in professional practice, but it is not currently certificated. However, after the training programme, our Apprenticing network is available to all alumni. We hold quarterly meetings for support and Continued Professional Development. There are also regular meetings for those organising Grief Tending events. We also offer assisting opportunities as a pathway for those who have completed the training and are building their practical experience, as well as options for mentoring.

 

Pre-Requisites for Applicants

Before undertaking a training in Grief Tending, we ask that people have experience of the practice by attending an event held by someone on the Apprenticing team. As well as a commitment to doing our own inner work, and ensuring that we are adequately supported, experiencing different Grief Tending events really helps students step towards becoming a Grief Tender.

 

Honouring Our Gifts

Before I became a Grief Tender, I was looking for something that would bring together the many segments of my own Venn diagram. These included:

  • Creativity and ritual
  • Nature and spirituality
  • Intimacy and relating
  • Embodiment and trauma
  • Systems thinking and processing pain
  • Mortality and grief
  • Community and care

 

Being of Service

Grief Tending training was a direction that made sense of my interests and skills. I was looking for a way to be of service in a world riddled with many kinds of grief, while living in a grief-phobic culture. The ‘Apprenticing to Grief’ training valued my unconventional life path and recognised the experience gained. This is a practice that does not ask for years of training at vast expense. I was welcomed onto the training, and my gifts were valued. I was encouraged to bring my own flavour into my development as a Grief Tender.

 

Grief Tending Training Since 2019

Along with two of my co-workers, Bilal Nasim and Tony Pletts, I was one of the first cohort of students in March 2019. Sophy Banks and Jeremy Thres inspired and guided us on our ‘Apprenticing to Grief’. Since then, the Grief Tending training programme has evolved and been refined into its current form.

 

Two Different Formats

The Grief Tending training now takes place in two different formats:

  • In person, over a week (This is offered twice a year in the UK)
  • Online, three modules, each 3 days long, plus 2 short extra sessions.

I have supported the programme many times, and also now co-lead on a regular basis. I will be co-facilitating with Jeremy Thres online in Spring 2026, and in person in Oxford in Autumn 2026. Further details, dates, fees and applications here.

“A really transformational, caring and beautiful experience and practice that should be available to everyone.” Former participant

 

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome. For more information about Grief Tending see the Embracing Grief website.

A guide to the best grief books through Francis Weller's Gates of Grief

At different times in our grief journey we may reach for a book about grief. But which are the best books to bring comfort for different life challenges? The right book at the right time can offer a life-line in the bewildering mix of feelings and circumstances that grief is made up of. Through reading the words of others, we may find solace, and the recognition that we are not alone with grief.

Here are some of my favourite books on grief, in its widest context. Many have accompanied me at times of need and in relation to Anticipatory Grief, in preparation for times to come. There’s even a word for looking for support from a book – ‘bibliotherapy’.

I’m going to use Francis Weller’s ‘Gates of Grief’ in this article as a way into the landscape of grief. As a starting point to feel into, each gate opens wide into many sources of grief. Which are the best grief books for each situation? With each Gate I suggest books that might be relevant.

ALL THAT WE LOVE WE WILL LOSE
(Francis Weller’s 1st Gate of Grief)

 

Best Books for Grieving and Need Help Now

 

‘Tending Grief’ by Camille Sapara Barton

If you are in acute grief and can’t concentrate long enough to get to the next paragraph, let alone read a book, but are willing to try some simple exercises, jump to Part 2 of ‘Tending Grief’ by Camille Sapara Barton. This section is a toolkit of supportive grief practices and rituals.

Quote: “These grief spaces will enable us to make generative connections between our own lives, our ancestors, and the stories of the lands we inhabit or are ancestrally connected to. We will all have space in the community to be with our sorrow and be embraced with tenderness.”

‘The Grief Book’ by Debbie Moore and Carolyn Cowperthwaite

If you can’t cope with doing a five-minute exercise, or concentrate at all, ‘The Grief Book’ is a little treasure trove of bite size pieces of information and coping strategies, to take in small steps.

Quote: “Everybody’s grief is unique. However you have reacted so far is fine, it’s how you needed to be. There is no one correct way to grieve. There are as many different ways to grieve, as there are people grieving.”

 

Best Books for Understanding Grief

 

‘The Wild Edge of Sorrow’ by Francis Weller

If you or someone you know is grieving, and you want to find your way around the territory, ‘The Wild Edge of Sorrow’ is an excellent guide. Francis Weller describes the many different reasons we may grieve. It offers a way to navigate the complex and intertwined sources of grief. And it provides a framework for collective grief rituals, which can help us to make sense of it all. It is written in beautiful language which speaks to the soul. Francis Weller provides a series of ‘Gates of Grief’ which may resonate with you personally, or in a messy tangle of inter-weaving reasons to grieve.

Quote:“Grief and love are sisters, woven together from the beginning. Their kinship reminds us that there is no love that does not contain loss and no loss that is not a reminder of the love we carry for what we once held close.” 

‘Bearing the Unbearable’ by Joanne Cacciatore

This book brings a rich mix of deep wisdom that is anchored in the stories of those who have experienced traumatic grief. The death of Joanne Cacciatore’s new born daughter was her doorway into the exploration of suffering through loss. ‘Bearing the Unbearable’ does not sweeten the pill of needing to pause and be with grief, but does so with compassion. Short digestible chapters build up an understanding of grief. While Joanne Cacciatore focuses on the death of a loved one, she also recognises the threat that unprocessed grief poses in our communities and societies.

Quote: “When we love deeply, we mourn deeply; extraordinary grief is an expression of extraordinary love. Grief and love mirror each other; one is not possible without the other.”

 

Best Book for Coping With the Loss of A Loved One

 

‘It’s OK That You’re Not OK’ by Megan Devine

If you have lost someone dear to you – whether family member, close friend or beloved pet, this is a practical guide to personal loss. Megan Devine brings an understanding of the grief-phobic culture you are likely experiencing that loss in. There is an invitation to the reader to approach and use the chapters in any order. It is brilliant and helpful. There is also a fantastic section about what to say and how to be with someone who is grieving.

Quote: “The reality of grief is far different from what others see from the outside. There is pain in this world that you can’t be cheered out of. You don’t need solutions. You don’t need to move on from your grief. You need someone to see your grief, to acknowledge it. You need someone to hold your hands while you stand there in blinking horror, staring at the hole that was your life. Some things cannot be fixed. They can only be carried.”

 

THE PLACES THAT DID NOT RECEIVE LOVE

(Francis Weller’s 2nd Gate of Grief)

 

Best Book for Coping with the Legacy of Unmet Needs

 

‘Self-Compassion – the proven power of being kind to yourself’ by Kristin Neff

Kristin Neff describes the science behind why self-compassion is a powerful strategy, and how to put it into practice. This book has a simple message told in detail. It doesn’t have a grief focus; but in working with grief of all kinds, self-compassion is a simple and effective tool.  In the absence of care for all parts of ourselves, and faced with expectations that are impossible to meet, we may have a fierce critical voice inside us. The legacy of neglect or an absence of support is often a sense that ‘it’s my fault’. The many ways this internalised voice gives us a hard time, can be gently re-oriented with self-compassion. There are some guided exercises to help practice self-compassion, if reading a whole book feels unmanageable.

Quote: “When we consistently give ourselves nurturance and understanding, we also come to feel worthy of care and acceptance. When we give ourselves empathy and support, we learn to trust that help is always at hand. When we wrap ourselves in the warm embrace of self-kindness, we feel safe and secure.”

 

Best Book for Processing the Grief of Childhood Trauma

 

‘Unshame’ by Carolyn Spring

Shame is a feeling that is entangled with relationships, with how others see us. If we did not receive the loving care and attention that we deserved as children, or as adults, grief for the places in us that weren’t loved may be coupled with shame. Carolyn Spring is a survivor and guide for those who have experienced abusive or coercive behaviour, which can leave us with a feeling of unworthiness that may be internalised as toxic shame. In a culture where grief is not welcomed, shame may also be entangled with the way we grieve. Self-kindness is one of the most important needs when working with painful feelings.

Quote: “There’s all this stuff – the trauma, the abuse, the stuff that happened to me – and it’s messed my life up, but I mustn’t tell anyone or talk about it or refer to it or be affected by it, because it’s too much. No one wants to hear it. No one wants to know about it. .No one wants to feel it. So I have to hide it and hide it, and I have to push it away deep down within myself, so that no one can see. But it doesn’t go away and it doesn’t stop affecting me and it’s all too much…”

 

THE SORROWS OF THE WORLD
(Francis Weller’s 3rd Gate of Grief)

 

Best Books for the Impact of Grief for Our World

 

‘Tending Grief’ by Camille Sapara-Barton

In the first part of the book, Barton introduces the practice of Grief Tending. Barton shows how the consequences of untended grief create further harms. The consequences are loaded against those who have less power or have experienced marginalisation. It is necessary to recognise the political, social, and cultural contexts that loss and trauma happen in. Tending our own grief – especially in groups is a route to find balance, restoration and resilience in the face of suffering and injustice. This is an act of community benefit, and not just for our personal development. Tending grief is a form of activism. It is needed as a balance to action in social justice movements. It may help us to face the fear and anger of anticipatory grief in relation to climate change, violence, oppression and systems of harm.

Quote: “As counterintuitive as it feels, embracing grief in agreed-upon containers would bring so many treasures to this work. When we set down what is too heavy to carry, it creates more space to think in a flexible way, to orient from a place of love rooted in what we care about and how we wish to operate in integrity. Tending grief can support us to feel more choice and support us to resolve conflicts, build trust, and engage in somatic transformation as a group – changing ways of being that have become automatic.”

‘Earth Grief’ by Stephen Harrod Buhner

Earth Grief invites us to face what is happening in our home planet, and to us as part of nature. Stephen Harrod Buhner places responsibility and accountability squarely on the shoulders of the polluters and extractors, rather than holding personal guilt. For me, his love and connection with the natural world help me to acknowledge what is happening, and to sit with the discomfort of this a little more comfortably. The overwhelm and disconnection are part of my coping strategies, and yet he calls on us to keep feeling.

Quote: “Astonishingly enough, the decision to turn the face to the source of the pain and grief, to fully embrace it, stimulates, over time, the emergence of the form of Earth work that is uniquely yours to do: work that comes from your essential genius, the work you were born to do, the work that Earth needs you and only you to do.”

 ‘Hospicing Modernity’ by Vanessa Andreotti

How do we begin to include collective endings? Coming to terms with the times we live in can be too overwhelming to begin to contemplate. Vanessa Andreotti is clear that if we really feel the myriad ways in which modern life is failing humanity, we will have to come to terms with the difficult feelings that may be unleashed. Andreotti illuminates the inter-relationships between systems of oppression, social injustices and extractive, exploitative businesses. She urges us to face the systems we are part of in order to understand and change our mode of engagement. For me, there is relief in this unflinching look at the consequences of current complexities, with an awareness of the differences between those in high or low intensity struggles. Understanding Andreotti’s world view may be a first step in engaging with grassroots, indigenous perspectives and finding ways to honour the more-than-human-world in our human struggle.

Quote: “The basic premise of the methodology is that if we cannot hold space for the complexities within us, there is no chance for us to hold space for the complexities around us.”

 

WHAT WE EXPECTED AND DID NOT RECEIVE
(Francis Weller’s 4th Gate of Grief)

 

Best Book that Recognises the Longing for Belonging

 

‘Of Water and the Spirit’ by Malidoma Patrice Somé

Malidoma Somé’s powerful memoir is about life in his Dagara village in Burkino Faso in Africa, that is undergoing changes brought about by colonisation. He experiences both a deep connection with his ancestral lineage, and a separation through his education in a Jesuit school. What ensues in an exploration of what happens in the absence of initiation, and the importance of connection with elders and ancestors. Documenting a society in flux both describes what our nervous systems have been designed to expect, and what happens when the lines of culture, tradition and care are broken.

Quote: “Wealth (among the Dagara) is determined not by how many things you have, but by how many people you have around you.”

 

Best Book for the Grief of Broken Hopes and Dreams

 

‘Billy, Me & You’ by Nicola Streeten

A brilliant graphic novel that tells the story of the grief and recovery from the death of her child in drawings. Billy died at 2, and this memoir was drawn several years later, based on the diary Nicola Streeten made at the time. It is full of the sad, annoying, odd things that happen in a grieving family. It includes the raw, but also observes the particulars of how the death of a child was handled by those around the family. I love the details about behaviours and biscuits that bring it to life and make it so relatable. It is both funny and real.

Quote: “This daily crying was a psychological necessity, like a bowel movement. But I was terrified by the surrounding taboo – the social limits to the display of grief and the involuntary judgements of others. At the same time I knew I would lose my mind if I bottled up such intense pain.”

 

Best Books When Facing Death and Dying

 

‘One Last Thing’ by Wendy Mitchell

Wendy Mitchell is a great guide to the options and decisions around end of life. She was diagnosed with early onset dementia, and became an advocate for the disease. Agency and choice are key guiding principles as she faces her own end of life. With family and medical professionals, she systematically explores her options in a frank, and friendly manner. This is the last of three books in which she explores focussing on living and what she is able to do despite having dementia. Highly recommended as inspiration for living fully and putting your affairs in order.

 Quote: “I am not trying to tell you how death must be done, or how it should feel for you. I just want to gently remind you that one day it will come, and the more prepared you are, the more conversations you are able to have with medical professionals and with those you love, the more empowered you will feel to live in the now – and you don’t need a progressive or terminal illness to do that.”

‘Grace and Grit’ by Ken Wilber

Cancer diagnosis and treatment have changed hugely since this was first published in 1991, but it remains one of my favourite books on facing illness. Essentially, it is a love story, written between and through Ken Wilber and his wife Treya; two eloquent people each with their own spiritual and creative practices. Grief is intimately entwined with love, as its shadow twin. In addition to being a story about being or caring for someone with cancer, ‘Grace and Grit’ also offers an examination of the judgements and blame that may be ascribed to someone already dealing with the facts and physical consequences of illness. The authors examine the cultural meanings of the ‘sickness’ as seen by both orthodox and alternative medical perspectives. The book is also part mystical dive into the relationship between spirituality and mortality.

Quote: “The thought of losing her was unbearable. The only recourse I had was to try to stay in the awareness of impermanence, where you love things precisely because they are fleeting. I was slowly learning that love did not mean holding on, which I had always thought, but rather letting go.”

 

ANCESTRAL GRIEF
(Francis Weller’s 5th Gate of Grief)

 

Best Books on Digesting Intergenerational Grief

 

‘The Smell of Rain on Dust: Grief and Praise’ by Martin Prechtel

Martin Prechtel describes how undigested grief is carried down through generations. He shares his own experiences and brings indigenous wisdom from the Mayan Tz’utujil people of Guatemala, he calls for rituals and practices that process untended grief. His words weave magic in appreciation of the wild, deep, wonder of the world.

Quote: “When you have two centuries of people who have not properly grieved the things that they have lost, the grief shows up as ghosts that inhabit their grandchildren.”

‘Healing Collective Trauma’ by Thomas Hübl

Thomas Hübl recognises that collective trauma needs to be transformed in collective spaces. In this book he brings together the theories that help to understand how collective trauma is formed – through group experiences that impact whole communities. He describes the ways in which unresolved past suffering of traumatised persons is carried between generations. He also examines ways in which we may begin to attune and witness in group processes in order to begin the work of systemic healing. In a world where violence, war and oppression are rife, ongoing intergenerational trauma requires understanding and a willingness to do the deep work of healing together.

Quote: “Explicit traumas may injure the current function and ongoing development of individuals, while the enduring and implicit effects of trauma across individuals generate a vibration of suffering within a culture. This tapestry becomes a wavefield of collective trauma, and every human culture expresses pockets of generational trauma.”

THE HARMS I HAVE CAUSED MYSELF AND OTHERS
(Additional Gate from Sophy Banks and Azul Thomé)

 

Best Books on the Grief I Have Caused

 

‘In the Realm of Hungry Ghosts’ by Gabor Maté

Addictions may be a manifestation of ways in which we harm ourselves and others. Our accommodations that created protective defences may be maladaptive in our current life circumstances; but were much needed protectors at times in our lives when there was more stress or trauma than we could cope with. If adverse childhood experiences were a part of your development, you may resonate with Gabor Maté’s classic exploration of the relationship between developmental trauma and addiction. He also makes a clear case for neglect and absence of attunement from care givers as a significant form of developmental trauma. Maté makes the link between our painful feelings and adaptations – such as addictions – to manage feelings. Addictions may be a way in which we have inflicted harm on both ourselves and others. Managing active addiction is usually a necessary first step. Different chapters of the book explore different themes.

Quote: “A child can also feel emotional distress when their parent is physically present but emotionally unavailable. Even adults know that kind of pain when someone important to us is bodily present but psychologically absent. This is the state the seminal researcher and psychologist Allan Schore has called ‘proximal separation’.”

‘The Entangled Activist’ by Anthea Lawson

There are many impacts which happen to us that cause us to feel grief. However, there may also be a significant number of ways we may have caused harm. Despite our best intentions, our entanglement with the world of relationships and complex global problems can make our helping impulses manifest as over-giving or rescuing. The ways in which our need to do good in the world, can become part of the problem. Anthea Lawson is a shrewd, observer of herself, the organisations she has served and the scope of problems with deep intractable causes. Rather than rush into head-driven solutions, this book is an invitation to slow down and take a good long look at our motives and find our way back.

Quote: “Sophy Banks observes that the ‘missing link’ in traumatised cultures is the ‘return path’ from the fight/flight or freeze states to regular nervous system functioning. The return path should be a social one. People who have experienced trauma need the soothing of others. They need holding and they need practices that create safety and that support them to ‘shake out’ the emotional and physical residue of the event.”

 

OTHER
(An extra Gate so that everything is welcome)

 

‘Grief is a Thing With Feathers’ by Max Porter

This is a book that doesn’t neatly fall into a pigeon hole. It is not a personal memoir, and it is written by a poet, but defies being ‘poetry’. Like crow – a metaphor for grief – it is wild, raw at the edges, clever, enchanting, and curious about mortality. It drops lines like feathers, which speak volumes, and allows ‘Crow’ to cajole, poke, laugh and expand our understanding of a Dad and his two sons, who have lost their mother.

Quote: The house becomes a physical encyclopaedia of no-longer hers, which shocks and shocks and is the principal difference between our house and a house where illness has worked away. Ill people, in their last day on Earth, do not leave notes stuck to bottles of red wine saying ‘OH NO YOU DON’T COCK-CHEEK’. She was not busy dying, and there is no detritus of care, she was simply busy living, and then she was gone.”

‘Hell Yeah Self-Care! A Trauma-Informed Workbook’ by Alex Iantaffi and Meg-John Barker

Alex Iantaffi and Meg-John Barker recognise that different things work for different people at different times in terms of self-care. This fundamental understanding is part of a trauma-informed approach that acknowledges the context that we operate in, including our histories and neurobiologies. Self-care as defined here is a radical practice. This work book offers an opportunity to explore what works for us, what blocks us, and what it means to be kind to ourself (or selves). It includes lots of questions and blank pages for reflection.

Quote: “We’re part of systems, such as families, cultures, communities and so on. Our relationships with these systems shape our capacity to care for ourselves and others.”

I have read and enjoyed many other really good books on the themes of dying, death and grief. In this article I have tried to identify the best books – both well written and applicable to someone facing the natural spectrum of emotions that make up a particular source of grief. I find using Francis Weller’s ‘Gates of Grief’ as a framework helpful to understand the many possible layers and sources of grief that may be part of someone’s unique grief picture.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome. For more information about Grief Tending see www.griefsupport.org.uk .

 

Different sizes of grief ritual shown here with stones

Different Grief Ritual Sizes

Whatever the size or format of the Grief Tending rituals and events we offer, they all follow a similar shape, and include the same arc of experience. We begin by building connection within the group, and calling on support. Then we offer exercises to help surface feelings. A central grief ritual allows emotions to be expressed, and then we are welcomed back into community. This is followed by gentle soothing. Towards the end, we do some tasks to help us integrate our experience of the session before closing.

A Big Grief Ritual

The Embracing Grief Team and Sophy Banks are holding ‘Tending the Heart’, a 4 Hour Grief Tending communal grief workshop in London with the capacity for up to 100 participants plus a large team to provide support. It has the potential to be a powerful experience, an opportunity to share a big grief ritual with many others.

Small Group Grief Workshops

The size of the group we are in effects the shape and impact of the event. In our small group workshops in London, the maximum capacity is 12 participants plus 3 Grief Tenders in the team. At this size, everyone will be able to hear something from each person. A small group allows everyone to feel connected. It is intimate. We may feel visible, which may be both exactly what we hope for, and uncomfortable for some. The facilitators will have direct contact with each group member. There is usually an option for stepping into a quieter space, or having a one to one chat with a team member if needed, to support someone’s ability to participate.

Medium Size Grief Workshop

In a medium sized group of 13-24, there is usually a bigger team supporting the participants. There may be exercises in small groups, where intimate sharing is possible. But not everyone will hear from each person. A group ritual is likely to have more energy than in a small group. There are more potential connections to make, so it may feel less intimate, but also provide more opportunities to meet different people or find those with shared experiences. The group itself may be a dynamic mix of people. The facilitators will still have direct contact with every member of the group. We have capacity for up to 20 participants plus team at our new venue in Devon.

Big Grief Ritual Events

We design the format of the session to accommodate the size of the group. We also take into consideration the surroundings. In a large event with more than 25 people, everyone will not necessarily meet or hear from each person. The group itself takes on more of a holding role. The facilitators will hold the space and steer the energy of the whole group, but not have direct contact with every person.

The big workshops and community rituals which we have held at festivals have comprised 150-200 + participants, depending on the available space. This may allow people to feel more anonymous, to try the practice with less self-revelation. Strong singing and drumming may happen in a big group, offering another layer of community holding. This kind of stimulation and noise may also be overwhelming if sensory processing is challenging for someone.

Grief Tending rituals with Sobonfu Somé, one of the main conduits of Grief Tending as a practice, would regularly hold huge groups. When a gathering of this size comes together, there is opportunity for a very potent ceremony.

People often have different needs, and understanding these different grief ritual sizes may help someone recognise what is right for them. Our frequently asked questions page includes more information about different formats of event – such as online or in person, one or two day events. You can see more about Grief Tending, and different workshops here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome.  For more information about Grief Tending events see here

'A New Kind of Wilderness' image from the documentary film.

The Wilderness of Grief

‘A New Kind of Wilderness’ is a moving portrayal of a family navigating love, loss and belonging. The film captures how grief shows up in many forms. We see the family’s struggles to navigate change. It is unusual to see the intimacy of grief revealed, as it often remains private, and undocumented. Over time, we discover how the family meets the challenges, through the beautifully captured micro details of their relationships with each other and the world around them. This documentary film may resonate with different experiences of the wilderness of grief for its audience.

Loss of Hopes and Dreams

In everyday life, grief manifests as a range of natural emotional responses to many kinds of loss, change and absence. This includes bereavement, as well as other forms of separation, longing or change.

One of the ways in which grief plays out in ‘A New Kind of Wilderness’ is in the loss of hopes and dreams. We see multiple elements of grief in the film, as one impact sparks an unravelling of layers. Nik and Maria have chosen to create a sustainable lifestyle, home-schooling the 3 younger children, but the future they have imagined together crumbles.

Secondary Losses

When grief impacts us with one loss, separation or tragedy, there may also be other associated losses, endings or changes. Some of these ‘secondary losses’ or consequences may dramatically affect the life of someone who is already grieving. The death of a loved one for example, may start a whole connecting set of losses like dominoes falling. This may cause a bewildering and devastating impact on all those involved.

Our Existing Emotional Landscape

Each person’s grief is unique. When something happens in our life, like the death of someone close to us, it doesn’t arrive in a neutral environment. It lands in our existing emotional landscape. What impacts have come before, may define how this new event adds to our current grief load. Are there unresolved issues, previous losses, absences, childhood traumas, minority stresses, or other pressures that might affect how we deal with what is happening in the present? There isn’t usually a neat and easy pathway to follow, but we may turn away from the feelings; and then when we have capacity, move to face into grief.

Additional Factors to Grieving

If we are well supported, and resilient enough to experience the emotional storm, we may be able in time to grow through grief. When the death of a loved one happens, there are many factors that will affect our ability to cope. What was our relationship like? Did we have time to prepare for their end-of-life? Were the circumstances traumatic? Are we accepted by their friends and relatives? Are we separated from home? How resourced are we?

Finding Enough Support

In order to meet the challenges of grief, we need enough support, and resources to manage our circumstances. A supportive community around us in the wake of loss, is really helpful. Feeling a sense of belonging and shared values may enable us to feel held by family or community. If this is not available, it may be yet another reason to grieve. There are ways that the family in ‘A New Kind of Wilderness’ are making ‘alternative’ choices. Belonging becomes an important longing, as each person learns to adapt to new circumstances.

When we are grieving in a grief-averse culture, it can really amplify the sense of being an outsider. Whether there are people around us who are ‘grief literate’ and willing to listen without judgement or fear matters. We also need people to help with practical jobs that are beyond our capacity. It is important to be able to reach out to ask for and receive the support that may be available to us.

Simple practices that help us to take care of ourselves are essential. In the wake of loss, juggling the needs of everyone at home, and having space to be with grief may be complex. As a parent in a grieving family, it can be difficult to find what supports you, as well as helping children to adapt and grieve at the same time.

Grieving Style

Our grieving style is one of the things that will affect our ability to grieve well. Our personality, history, socialisation, cultural norms and even our neurobiology will make a difference in how we experience feelings and express grief. When things are too much to bear, we may find ourselves overwhelmed or numb. We may feel a confusing mix of anxiety, rage, despair, guilt, and deep sorrow. There may be relief, gratitude and love present too. These are all normal responses to life’s challenges.

There are many ways to allow the natural expression of grief – whether quiet or loud. If we can find kindness, without judgement, (from ourselves or others) it can ease our journey through the wilderness of grief. Shame is also often present where others are suggesting that it’s time ‘to move on’. Grief doesn’t have a sell-by date. Space to be with our own grieving process, for as long as it takes, is a more useful frame. We don’t ‘heal’, but may in time, be able to grow our life around the grief.

Rituals to Manage Change

Rituals can help us to manage change. In ‘A New Kind of Wilderness’ we see the family create some of their own rituals to mark the passing of time, to remember and to honour what is important. You may have an existing belief system with a known set of practices around rites of passage. For those without a particular faith, choosing what to do and how to mark significant moments may be more unknown. There are many possibilities available to the ‘spiritual but not religious.’ There are often many ways to experiment and make your own personal or family rituals.

Sometimes the small ways to honour someone or something are supportive and healing. It may be as simple as lighting a candle, writing a letter to someone to tell them you love them, placing an offering of flowers by a photography, or placing hands together on the earth. Community rituals are another great way to step from one phase of life to another, or to process grief.

Grief for the Earth

From the opening of the film, we find ourselves embedded in wildness. Our guides are parents who believe in teaching their children to respect the natural world. Their choice is to live sustainably ‘without taking more than we need’. Earth grief, and the collective pain of climate disruption and bio-diversity loss are the implied context of ‘A New Kind of Wilderness’. An awareness of the disconnection from nature in an extractive, and digital culture is the wider grief that provides the context for the setting of the film. Maria and Nik have set out to live in close connection with the cycles of nature, and the family find themselves understanding more about what it means to live and die, to be part of the cycle of life.

Imagining a New Future

From the impacts of loss, and ruptures with their chosen lifestyle, we watch the family move towards a re-imagined future. Belonging isn’t easy. Each person has to step into vulnerability, and risk something to grow up. Finding their way to make a new life takes us on a moving and inspiring journey. The love of what is lost remains. Grief is hard to bear, but sometimes, through experiencing it, there can be a deeper-meaning integrated into our lives.

Sarah Pletts is a Grief Tender and Artist who offers workshops, sharing rituals where grief on all themes is welcome. She has a close relationship with local urban wildlife, and chosen family in Hackney, London. For more information about Grief Tending events see here. For a review by Sarah of the film ‘A New Kind of Wilderness’ see here.

Poppy in full bloom to represent the flourishing of Grief Tending.

We have been collaborating with Sophy Banks of Grief Tending in Community to track the way that Grief Tending is flourishing. It is becoming more widely known, and spreading geographically. Many more people are offering the practice and there is a growing number of people who have attended one or more Grief Tending workshop, ritual or event.

Introduction to Grief Tending Audit

Grief Tending in community is a practice that involves a group of people coming together to share grief, with space to express their emotions. It can be a life-affirming experience and in addition to providing support and relief for current grief, can help people learn skills to cope with grief. Grief Tending events including a range of practices: simple exercises for participants to build trust, group ritual to express and witness feelings, embodiment to regulate the nervous system.

In Grief Tending events, all kinds of grief are welcome. We honour loss, absence, longing and change, and reconnect with intimacy and belonging. Grief tending is rooted in the teachings of Sobonfu and Malidoma Somé, Joanna Macy, Martín Prechtel and others, and has been shaped by teachers including Maeve Gavin, Francis Weller and those in this network.

Grief Tending events take place in a variety of face to face and online settings, including: an existing community, a group of people who come together temporarily, and a group who meet regularly.  Each Grief Tending event is facilitated by Grief Tenders.

In 2024 a preliminary audit was undertaken of Grief Tending events in order to observe and record the range and diversity of current practice

Audit Methods

Grief Tenders recorded and shared information on their face to face and/or online events. Information on the date and length of event and numbers of facilitators, assistants and participants was recorded in an online spreadsheet. This information was then summarised.

Note that we recorded the numbers attending each event. Some will be returners, so the total number of people who have attended events is less than the number shown here. We estimate that between 10 – 25% of people have been to an event before.

Results Show Grief Tending is Growing

Eight Grief Tenders shared information on 225 events held between 1/12/2013 and 31/12/2024, where grief was shared and witnessed. In total there were 3066 people attending (including a total of 720 at two festivals in 2023 and 2024). Participants joined from all continents (except Antarctica), the majority from the UK, followed by Europe and the US and Canada.

The number of Grief Tending events increased over time. The duration of both face-to-face and online events varied widely.

There were multiple short online events – some lasted 1 hour others 4 hours and others were all day or over multiple days. The longest online programme is the Apprenticing to Grief, which runs over 3 weekends.

The duration of face-to-face events varied from one or more hours, to workshops which ran over four days, and the Apprenticing to Grief over six days. Most face-to-face events lasted for 1 day or 3- 5 days.

All events (online or face-to-face) were led by a Grief Tender and supported by at least one other Grief Tender, facilitator or assistant.

Developing our Research

We believe this to be the first audit of Grief Tending events. Some participants have taken part in more than one event, so the total number represents workshop spaces attended. The number of unique people who attended is estimated at around 80% of this figure. Some figures provided by facilitators are estimates based on average numbers attending workshops.

Our initial objective in gathering this data was to sense the impact and reach of this network. In 2025 we aim to gather more comprehensive information from more people who are holding spaces. We would also like to see what else has resulted from attending the Apprenticing to Grief programme.

Many of us holding workshops gather evaluation information at the end of a workshop, or invite this feedback from participants online afterwards. We believe Grief Tending in community to be a low-cost, high impact intervention to improve mental wellbeing of those impacted by bereavement, loss, past trauma, stress, and life changes. We also believe it can have beneficial effects on those around people who come, which would be harder to measure. We would like to understand more about the impact of these practices on those who have attended Grief Tending events. We are exploring the best methods for doing this e.g. a survey of people who have attended.

Thanks to all those who shared their data, and all of you who are helping this vital work to spread to those who may need it.

You can find Grief Tending workshops with the Embracing Grief Team in London, Devon and online here. For the Apprenticing to Grief programme online or in person see here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome. For more information about Grief Tending see www.griefsupport.org.uk .

Image of rubbish on the shore to provide an atmospheric portrayal of grief, through this sad image

The Origins of the 5 Stages of Grief

Elizabeth Kübler-Ross originally defined ‘The 5 Stages of Grief’ in 1969, when she was working with the dying. These stages were never intended as a route map for grieving. Kübler-Ross was a pioneer whose work with the dying brought many valuable insights into end of life care. Her book ‘On Death and Dying is a classic text in care for the dying. She later revised her thinking and described overlapping and incomplete stages, the 5 Stages intended only as a loose framework, and re-defined as the ‘Kübler-Ross Change Curve.’

The Stages of Grief Model May be Unhelpful

Kübler-Ross’s 5 Stages – Denial, Anger, Bargaining, Depression, Acceptance have been absorbed into popular culture and spread widely. They sometimes include additional or varying stages – shock at the beginning and meaning at the end to comprise 7 Stages of Grief. If you were to ask most people what they know about grief, “the five stages of grief” will be a common answer. What isn’t so widely known is that our understanding of grief stages have been updated both by Kübler-Ross and subsequent bereavement researchers. There are now more theories about grief and loss.

Each Grief Journey is Unique

The problem with reducing the messy, unpredictable landscape of grieving into a series of neat stages is that it offers an image of grieving that doesn’t match people’s experience, and may make them feel that they are doing grief wrong. Each grief journey is unique, and has its own trajectory and pace. Francis Weller’s description gives a much clearer picture of the raw, intense, and wild storms that grief often brings:

“Grief is subversive, undermining the quiet agreement to behave and be in control of our emotions. It is an act of protest that declares our refusal to live numb and small. There is something feral about grief, something essentially outside the ordained and sanctioned behaviors of our culture. Because of that, grief is necessary to the vitality of the soul. Contrary to our fears, grief is suffused with life-force…. It is not a state of deadness or emotional flatness. Grief is alive, wild, untamed and cannot be domesticated. It resists the demands to remain passive and still. We move in jangled, unsettled, and riotous ways when grief takes hold of us. It is truly an emotion that rises from the soul.”

Grief is Messy

While some of the feelings described in the 7 stages of grief may be in the mix, the whole territory is vast. Sorrow comes in all shades from sobbing to quiet despair. Grief may include fear – everything from anxiety to terror. It may include anger – from frustration to rage. Overwhelm may manifest as disconnection. Feeling numb may manifest as busyness, and yes, not feeling is an expression of feeling. There may be the bitter sweetness of love and gratitude.

Our relationship with who or what has been lost may be complicated. Guilt, shame, envy, remorse or relief may be present too. There are many emotions and ways to feel and a variety of ways to express grief too.

Symptoms of Grief

The experience of grief may include some or all of the well-known grief stages as well as a range of other emotions. It may also include a whole range of physical symptoms. Disruption to sleep patterns and changes in appetite are extremely common. Disturbances in thought patterns may include repetitive thoughts, flash-backs, brain fog and a chronic inability to concentrate. Memory might not be functioning well as we try to make sense of what happened. Physical aches and pains may appear to have a symbolic component; a broken heart that literally aches, an unsupported sore back, or unfamiliar tension that manifests as a pain in the neck. There may be all kinds of gut responses as well as swallowing down what we feel with food.

What Should Grief Look Like?

Grief is a wide range of natural responses to loss, absence, suffering, or change. Instead of a fixed set of grief stages, the experience is often more chaotic. Emotions, moods and symptoms may all come and go, or persist over time. The nature of what has caused the situation will also be part of the picture. Has the impact, injury or situation happened suddenly? Does it have a traumatic element? Is the experience complicated by a complex set of circumstances or a difficult relationship? Is what has happened perceived as unusual in some way? Are there other secondary losses or changes as a consequence of the first?

How Long Does Grief Last?

I often hear people measure themselves against a perceived state of acceptance (Kübler-Ross’s 5th stage of grief). Bereavement or loss changes us. It doesn’t just come to visit and then leave when we reach a certain stage. When we lose something significant in our lives, we change to adapt to the new shape of our circumstances. Our ability to grieve well can affect how we handle bereavements or losses, and make a real difference to our mental health. Rather than a path from stage 1 to 7, I prefer the metaphor of an ocean. As grief comes in, waves crash over us, often one after another. We may be submerged by big waves and knocked off our feet. At some point, the tide turns. Waves will still crash against us, but may be less frequent, and less ferocious.

Why is Grief Hitting Me Hard?

As well as the ‘what happened’, to cause my grief, the context of it – the surroundings that it happened in – will also affect how it is experienced. A significant loss may come into a situation where mental or physical health is already poor. Other losses may have been piling up. There may be a history or trauma, violence or oppression that this particular grief appears in the midst of. If we are from a marginalised community, we are also statistically likely to experience more losses. Something may happen in an environment where there is not enough support to hold us. Our surrounding community (or lack of it), our resilience, our resources, will all play a part in how each impact of grief lands into our lives. Do we face layers of challenges, mor do we have enough support to lean into in order to turn towards what ails us?

Understanding Grief

Grief can be scary. A little psycho-education goes a long way. People are hoping for a map – like the stages of grief – to help them navigate the unknown. There are some great models that can help us understand the journey through grief.

Lois Tonkin’s ‘Growing Around Grief model – showing jars of increasing size, brilliantly describes how we grow and develop, to accommodate loss, becoming greater in capacity ourselves rather than shrinking grief over time.

The ‘Dual Process Model (Stroebe and Schut) is another practical way to understand grieving. Rather than describing stages of grief, this model describes co-exisitng processes. Being loss-oriented sits alongside being restoration oriented. Part of us is preoccupied with our emotional experience, while at the same time life continues, which may include practicalities, responsibilities, resourcing, and encourages us to recognise times when we have permission to focus on other things if we are able. The focus between grief and life changes over time.

How Do I Learn to Grieve?

Learning to mourn is a skill. There are tools that can help us. It can be really helpful if we understand more about this natural process. Unfortunately, many people avoid the subject. The bereaved may feel contagious, as though grief is catching. Those around them often fail to know how to be with them or what to say.

I wish ‘how to be with grief’ was taught in schools. How comfortable we are with our own history of loss will communicate without words. To support others, it helps that we have attended to our own grieving. When we avoid the small things that trouble us, they build up. Emotional laundry is as important as washing our clothes.

Allowing time and space to slow down and feel is a key to tending our grief. There are many simple practices to be with grief and release – through breathing, noticing sensations, movement, singing, being in nature, creative exercises and using ritual and ceremony. Reading poetry, listening to music or watching films on the theme may also touch us and allow us to connect with feelings. Sharing with others is a great practice to discover the connection that builds through expressing vulnerability.

Is My Grief Stuck?

There are different ways grief can feel ‘stuck’. We may feel too disconnected to feel anything. We may have needed to bury our emotions because it wasn’t safe enough, or we didn’t have enough support to grieve in the past. The job of grieving may sometimes wait until our conditions are more spacious and supportive. This can lead to months or years before we have capacity to process something. Things may surface later in life. In the present, unexpected feelings may be activated. Sometimes the necessary adaptations from the past no longer serve us, and we choose to explore more deeply, to feel more fully.

The way we were socialised – by gender, or family, or circumstances may also contribute. Many of us have been encouraged not to show emotions, or cry. Sometimes our grief may have left us in a state of freeze. Something shocking or terrifying may have happened. We may not have enough support to have risked thawing. We may feel that our grief is too big to risk feeling. It can feel that if we open up big feelings, we will be submerged and never return.

For whatever reason, there may be a sense of stuckness. It may manifest as physical symptoms or dis-ease. And our grieving style or neurobiology may mean that the way we express grief is less outwardly visible. To open up stuck feelings, it is helpful to have support in place. This may be a mix of people, practises and resources. Grief Tending is one way to encourage the flow of emotions and energy to move through us.

When We are Ready to Tend Grief

Grief Tending is a practice where we learn skills that help us move towards feeling, and also how to return from grief states. In Grief Tending, we recognise all the different ways we may experience and express grief. We acknowledge a broad range of causes of grief as well as the loss of a loved one. We witness people coming together, and risking vulnerability. Some may come with grief that is flowing. For others grief may feel absent, stuck or confusing.

The exercises we offer may allow feelings to shift. We encourage tending to what arises – allowing rather than forcing. Tending to grief is about giving space for what is rather than prescribing or judging how grief should look or feel. We use exercises where we move towards feelings then return to support. Allowing the breath, body and emotions to move is a way to bring flexibility to our inner experience. This may help us to navigate our growth through grief.

Turning to Face Grief

Our bodymind system may desperately want to avoid grief. So often people don’t know how to grieve well. Many have not had wise elders to show them, or practices to learn; or enough emotional holding to dare to go there. When we are ready, and have enough support in place, Grief Tending can be a sensitive and caring way to turn towards grief, to lean into feelings. In a Grief Tending group, we come with the intention of sharing something of our grief together in a group. We will experience both expressing something of our unique experience, and also be a witness, part of the holding of others. This can give a profound insight into our shared humanity, and also how to be with another who is suffering.

Find Grief Tending events online and in London here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome. For more information about Grief Tending see www.griefsupport.org.uk .

Trolls and plastic animals and letters spell out the title of the post

Introducing Rainbow Mums

‘Rainbow Mums’ is a podcast series about LGBTQ+ families, through interviews with gay and bisexual parents. The stories of LGBTQ+ families cover the rich lived experiences of five Mums plus one episode, ‘Sarah and Nicholas in Conversation’ where I reflect on queer parenting with Nicholas McInerny, the host of Rainbow Dads’.

Queer Parenting

For me, ‘to queer’ is a creative process where the edge-dwellers are essential, bringing vibrant, playful, unorthodox ways of doing things, looking at things from different perspectives with diverse voices. So, the ‘queering’ of parenting brings many different possibilities. There are many ways of becoming and living as an LGBTQ+ family. Queer Circle offers resources and events in London to explore creative health, including Queer Grief Tending.

Growing Up Gay

Some people come into life gay from the ground up. They may be perceived by themselves and others as different. They may be aware of same sex attraction. Puberty may bring sexuality to the front of their awareness. It may also register in the minds of family and friends and be met with judgement and stigmatisation.

In ‘Maggie’s Story’, the responses to teenage Maggie of those are around are challenging. Maggie speaks about the coming out scene from ‘All of Us Strangers’. In ‘Anjum’s Story’, there is a kinder response from family. Anjum’s journey includes being a lesbian and Muslim. The Naz and Matt Foundation offer support for gay Muslims. The homophobia and racism Anjum experienced outside the family offer reasons to advocate for justice. Galop, the LGBT+ anti-violence charity offers support for survivors of abuse and violence in the UK. If you need support with any aspect of sexuality and gender identity, Switchboard offers a listening ear.

Coming Out

As someone who came out later in life myself, which I talk about in ‘Sarah and Nicholas in Conversation, I have the luxury of stepping into a queer identity. I am conscious that I am able to do this precisely because of those who stood up against Clause 28, who challenged systemic oppression and struggled for equity and acceptance, civil partnership, and gay marriage. For a review of what came before, check out MJ Barker’s ‘Queer A Graphic History’. To see how LGBTQ+ people supported the miners’ and the political alliances which this inspired, watch Striking With Pride’.

For many, the ‘coming out’ rites of passage – to ourselves, to another, to family, to the outside world, can be huge turning points. I resonate with the awkward teenagers or middle-aged late teenagers, sometimes ambivalent and trying to come to terms with a new identity. There are many resources including zines for people questioning their identity by MJ Barker. Pink Therapy has a directory for those looking for an LGBTQ+ therapist to explore sexuality.

I look back at my own young hapless self, dressing sometimes butch, sometimes femme, seeking the elusive fantasy of same sex pleasure, but not knowing how to go about it. In ‘Emma’s Story’, her young goth self was bolder than me. Emma now hosts her own podcast series ‘Coming Out Stories’.

Sexual Identities

It took me many years to unpick the paradox of the bisexual experience. Bisexuality is often a landscape between a rock and a hard place of neither all heterosexual nor totally gay; often unwelcomed by those at both ends of the Kinsey Scale. The Bisexuality Report offers research on bisexual inclusion.

Misperceptions are often rife, and instead of fully expressing ourselves, we may find ourselves making tough choices to exclude parts of our core make-up. In ‘Sandy’s Story’, we follow her journey to make sense of the complexity of being pansexual and open to all kinds of attraction, while navigating the responsibilities of parenthood.

Once we have a sense of who we are in the world, comes the challenge of finding the other(s) we want to explore sex and relationships with. Our Rainbow Mums are diverse in age, and my sense is that Amy – the youngest, has grown up in a generation which is more open to sex and relationship diversity, than the Rainbow Mum’s who were finding their way in the 80’s and 90’s.

However, as Amy finds out, it is still a challenge when faced with the complex choices that love throws in your path. In ‘Amy’s Story’, the route to polyamory is a twisting tale that takes us across the globe in pursuit of a relationship dynamic that works. Polyamory comes in many forms, is definitely not for everyone, but can offer a way forward for those who wish to experiment with ethical non-monogamy. Amy talks about the classic primer, ‘The Ethical Slut’ by Dossie Easton and Janet W Hardy. I also recommend ‘Poly Secure’ by Jessica Fern.

Becoming LGBTQ+ Parents

Finding their way through the emotional mine-fields of desire, pleasure and relationships, we follow the Rainbow Mums in and out of partnerships – some of which don’t work out, and others which blossom into lesbian marriages. Either way, parenting continues to be a significant central axis for all of them.

Some gay and bisexual parents begin in heteronormative relationships, where children are conceived and cared for. Most of the Rainbow Dads were parents, and subsequently came out. Sometimes we suspected we were LGBTQ+, and sometimes that has been out of awareness even from ourselves. As we age, our priorities or sexual gearing can change too. For me, the need to be more myself increased with age, after I had spent significant time in a parenting role. It’s not uncommon for the changes of peri-menopause and menopause to also amplify hormonal shifts. Tania Glyde writes about navigating change in queer menopause.

Some bisexual parents may choose to parent together in an opposite sex relationship, as well as pursuing same sex relationships before, concurrently or after. In both ‘Sandy’s Story’, and ‘Amy’s Story’ they parent in relationships with a biological father, alongside other relationships.

For many same sex couples there are choices to be made. For AFAB’s and lesbians there may be a choice of who becomes a biological parent. There may be decisions about routes – such as donor insemination, surrogacy or adoption. These questions may involve choosing a biological father too – a known or unknown donor. There are ethical and personal reasons which a prospective gay couple will have to negotiate. In ‘Emma’s Story’, we hear some of the considerations for her family.

Then there are roles and names. Who gets to be called ‘Mum’? Are there one or two or more? Not all our Rainbow Mums, including me, are biological parents, but I hear how involved each of them are with the practical and emotional responsibilities of care-giving.

Children in LGBTQ+ Families

In every episode we hear about the unexpected joys of parenthood. It is a vital, often wonderful as well as a tough job, and is generally under-valued by society. In many ways it’s the same whoever you are. Whatever the route to becoming parents, we are delivered with a child that requires attunement, presence, practical support and encouragement. Emma mentions ‘Proud Parents’ who offer support to LGBTQ+ families.

All of the Rainbow Mums I speak to are passionate about and full of love for their children. We may have made choices about how to become parents, but the children that arrive are all unique and come with their own needs and strengths. In ‘Emma’s Story’, we hear about the unexpected life that has unfolded from having a child with Downs Syndrome. Children come with different abilities. For me, the neuro-spicy quality of my family has helped us to adapt to being different from the heteronormative frame, to allow space for each of us to change, grow and flourish.

The values which underpin my relationships and LGBTQ+ family are love, honesty, and a willingness to communicate. I hope that working with these intentions help us to navigate the tricky stuff – the ups and downs when we really need to see the best in eachother and find kind yet honest words.

LGBTQ+ Families

I grew up in a family where things weren’t spoken about without my curious questioning. There were several skeletons in the closet. My father was gay but didn’t begin to come out until he was 60. My own experience was, that on some level I knew, and the lack of direct conversation around the subject was confusing. The multiple masks that family members wore probably contributed to my inner confusion. I had a sense of dissonance, but struggled to work out what was going on beneath the surface.

As a consequence, I prefer to be open, to communicate clearly and in an age appropriate way with young people when necessary. I aim to parent in a way that allows both parent and child to express who they are. And of course, I have made many mistakes, and continue to learn from the younger ones. F F Flag support parents with LGBTQ+ children.

Families come in all shapes and sizes. Modern families often include a complex blend of step and half siblings. LGBTQ+ families often create a network of chosen family to provide supportive community around their immediate loved ones. This can be a brilliant resource, with an inter-generational flavour, as ‘Maggie’s Story’ describes, and I value so much in my inter-generational LGBTQ+ family. Family Equality work to advance equality for LGBTQ+ families in the USA.

Solidarity with LGBTQ+ People Around the World

I want to celebrate those who, often in spite of adversity, are able to be themselves and choose the relationships they want. All of these Rainbow Mums risk what comes with visibility, and have chosen to tell their stories, partly because there are many in the world who do not have those choices. Marginalisation and social injustices still happen. There are parts of the world, or cultures where LGBTQ+ families are not welcome, and being gay, lesbian or bisexual may be illegal.

I have the gift of being safe enough, but many are not able to express themselves freely. We offer Rainbow Mums and Dads in solidarity with those who are not able to be out and proud. Some of the organisations that support the human rights of lesbian, gay, bisexual, trans, queer + people around the world include the Kaleidoscope Trust the Peter Tatchell Foundation and Micro Rainbow.

Listen to ‘Rainbow Mums’ here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome. For more information about Grief Tending see www.griefsupport.org.uk .

Image that represents the theme of the text, showing a circle of shoes

Embodied Support for Grief, Using Creativity, Ritual and Grief Circles

In today’s world many people long to return to places where grief is spoken of, where we can find connection and name our truths. There are many practices where a grief circle is central, and Grief Tending is one of them. In Grief Tending, we set an intention to move gently towards feelings. Before a grief circle we use exercises that help to make people feel comfortable enough with the process to be able to participate. A grief circle is a ritual where feelings make be expressed. At the end we use practices to move back to rest and digest mode, to soothe our nervous systems once the grief circle is complete.

Our Ancestors’ Circles

Since people have been on this earth, they have gathered in circles. Our ancestors sat with a fire at the centre, and the crackle of logs, the scent of smoke. People all over the world and throughout time gathered to find warmth, tell stories, sing songs and speak from the heart. In places and organisations where we depend on plastic chairs, and electric light, rather than the glow of a fire, we may long to return to the practice of gathering in circle in nature. Despite modern environments, grief circles continue to be meaningful to participate in.

Grief Circles in Grief Tending

In Grief Tending we include embodiment, creativity and ritual in our events, and the way in which we bring a grief circle. When we practice Grief Tending, we often use a grief circle as the central part of the event. When we meet face to face, we use a variety of central practices to express feelings, including grief circles.

A Trauma Sensitive Approach to Grief Circles

Working with a trauma sensitive approach, we structure events so that exercises to focus on embodiment and support happen before a grief circle. During a grief circle we encourage people to take care of their needs. Sharing is always optional. It can be a big step for someone to risk being vulnerable, and be witnessed in a group setting.

And then soothing and integration practices happen after a grief circle.

The Circle is Democratic

Sitting in circle is an ancient and simple format for sharing with others. It creates a non-hierarchical form that can be democratic. Although a grief circle may have a facilitator, they are not above or below anyone else in the space. The voice of each member can be equally represented and heard. In the role of grief circle facilitator, I may share my experiences in the circle (when time allows), which participants often appreciate. Because this mirrors the universal nature of the experience of grief. The facilitator is also part of the circle whether they share or not.

Grief Tending in Community

Grief Tending is a practice that happens in community, and during an event we will make and return to a circle together repeatedly. We invite participants to be part of the holding container, so that each person will at times be a holder, or step forward to express themselves in some way. People who are in the holding role give their attention to witness and acknowledge someone who is sharing something. The person who takes a turn to step into the being witnessed role may speak or sound, sing, move or be silent.

If this is speaking to you, to find out more about the practice of Grief Tending here. And the grief circles we hold here.

Unspoken Truths

People often share things in a grief circle that they may not be able to in other contexts. They may reveal something that they have never told anyone before. There may not be words but feelings that are expressed through sounds, tears, body movements. If it feels safe enough, people may voice something, and through it being seen and heard by others, it can have a transformative effect. Being witnessed can be a very powerful experience.

The Role of Witness

Stories that have been kept secret or feel shameful may be received with the supportive attention of the circle. We invite the group to acknowledge what they have witnessed with simple words, “I see you,” or “I hear you”, but not to offer advice. One at a time people share, and the group receives them and responds without judgement. Hearing one another can be an extraordinary experience too. As Kelly McGonigal puts it, “Listening with your whole body except your mouth”. In the Grief Tending circles we hold, the listeners do not offer reflections or ‘cross talk’ with their own responses to someone else’s story.

How Does a Grief Circle Work?

In a grief circle our experience is welcomed, given space, and seen. Turns to share may be taken starting in one direction, one person after another. Or people may be invited to take turns ‘popcorn style’, whenever they feel ready. In a small group everyone may have an equal turn to share. This may be timed, so that the group’s time is divided equally. Even a small amount of sharing time can be useful. There may be a talking ‘stick’ or a sound, to mark the beginning or end of someone’s time to share. In a large circle everyone may not take a turn to share something. This will depend on the time allowed, the group’s intention, and the agreements set before the circle begins.

The Role of Sharer

Stepping into the role of sharer can feel very intense. As a consequence of previous history, being an introvert, trauma around groups, or being seen, can make this feel either a bit scary or extremely challenging. In the groups we hold, sharing is not an obligation. People may pass if it is their turn. Choosing to take a turn, but remain silent is also a valid way to use the opportunity. It is often the case that people have felt alone, ashamed, overwhelmed, not good enough. But when they share their real feelings with the grief circle, they discover that other people may have similar feelings or experiences.

Vulnerability Builds Connection

Through someone making themselves vulnerable by revealing their inner experience, this deepens and strengthens the connection felt in the group. In response to what has been shared the participants of the holding circle often feel empathy. This can lead to a sense of compassion between people for one another. As a consequence, they may each begin to recognise some similarity in the way they feel. Common themes may emerge amongst participants. As a result, this increases connection between group members.

We Deserve Kindness

Through the grief work that I do, I see windows into people’s inner lives. I regularly see that we are fierce keepers of our hearts to protect ourselves. We often judge ourselves more harshly than others. Many people are scared, anxious, and ashamed. Our inner critic take control, undermining our sense of self worth and confidence. Our unattainable expectations, inner perfectionists and not-good-enough imposter syndrome ties us in knots that keeps us restricted and small.

People Deserve Respect

Recognising this in others can help us see that we also deserve kindness, respect, and a chance to be seen. Malidoma Somé speaks of people’s natural longing to shine:

“Whether they are raised in indigenous or modern culture, there are two things that people crave: the full realization of their innate gifts, and to have these gifts approved, acknowledged, and confirmed. There are countless people in the West whose efforts are sadly wasted because they have no means of expressing their unique genius. In the psyches of such people there is an inner power and authority that fails to shine because the world around them is blind to it.”
Malidoma Patrice Somé  The Healing Wisdom of Africa: Finding Life Purpose Through Nature, Ritual, and Community

The Context That Grief Happens In

Events which spark grief happen to everyone. But they always happen in a context. It is not just the impact of the event itself which may cause grief, but how it was handled afterwards that may have added to feelings of not being held, seen, or protected after the loss or difficult situation. People often arrive in a grief circle after experiences which have not been received with the care and unconditional love which support healing. Therefore, with the holding provided by the members of the group, this is another way in which a grief circle can have a strong and healing effect. Sophy Banks talks about the context of grief in relation to the landscape of trauma in her work on ‘Healthy Human Culture’.

Every Loss is Important

In a grief group it can be tempting to feel that what someone else shared is more important than what I bring. But each loss is important, a true expression of feeling. Consequently, this spectrum of different experiences, and variety of ways of expressing feelings adds value to the whole. I like the image of a jigsaw puzzle. We each bring a different piece. Through each person’s contribution, and the diversity of the group, we make up a more whole picture.

Grief Circle Agreements

Setting up a grief circle requires careful boundary setting. When we facilitate a grief circle, we make agreements with the group beforehand around self-care, confidentiality and mutual respect. This is essential so that people may feel safe enough to participate. We aim to give clear instructions about the different roles of witness and sharer. We also try to give permission for people to be able to respond to the space in a way that works for them.

Boundaries in a Grief Circle

In addition to this, we make clear boundaries about start and end times, as well as making sure we can be in a private space, where we won’t be interrupted. According to the limits of event length, allowing an equal time limit can be a helpful way of maintaining equal value of each participant.

A grief circle can work really well online, as well as in person. In both formats, we like to make a clear threshold at the beginning and end of a grief circle. We usually invite the participants to breathe or sound together so that we begin a process of attuning to one another. Silence is also valuable as we move into a grief circle, but it can also allow the group to drop into a deeper level together.

A Grief Circle is Where the Magic Happens

For me, the trust that has been created before a grief circle starts is crucial. The openness of the participants, the willingness of people to bring their vulnerability, and the capacity of the facilitator to hold the space, all add to the level of communication that the group collectively arrives at. There is also an element of mystery which it feels important to acknowledge. When people come together in a grief circle, something magical can happen. In addition to the conditions that have been set up, the dynamics of each group creates something unique.

Each Circle is Different

I have sat in circle many, many times, and each time it is different. Often there is a huge spread of different kinds of sharing, and sometimes themes emerge spontaneously. There can be a lot of difference between people or similarity. Whether it is large, or small, each circle has been valuable. And witnessing others is just as important as having a space to evoke feelings.

I am Not Alone

When we sit in a grief circle with one another, we may see how other people feel about themselves, which may help us be kinder to ourselves. When I hear that other people share my concerns for the things that are happening personally, locally or globally, it helps me to feel that I am not alone. In addition, I may gain a new perspective by recognising that it’s not just something that only I feel. It’s so easy to make judgements about others, to project our idea of who they are onto them, until we hear about their inner life, or the challenges that they are facing or the history that they carry.

Different Kinds of Sharing Circle

There are many different kinds of sharing circle. They may happen in a village, with an elder or leader, amongst peers in an existing community; or amongst strangers with a facilitator. Many different kinds of groups and organisations use this simple format, because it is as old as the hills and it works. A sharing circle may have a specific theme, such as grief, or a specific client group, such as people who live in this community, or people who have experienced bereavement recently. It is used for conflict resolution work, and for relating with others in many kinds of self-development work.

The Way of Council

‘The Way of Council’ is the format which underpins the grief focussed circles that we hold. Although in a Council, people may be invited to bring whatever is alive for them on any theme.

“The heart of these practices – of listening, learning, living and thinking like a circle – are needed now more than ever.”
Ways of Council

I echo this call for circles, the importance of listening to one another, of sitting with our truths, and the transformative power that this can have in our wider communities.

Grief Tending Often Includes a Grief Circle

In Grief Tending, a grief circle is one of the shapes we use. We may use other rituals according to the physical space, the number of participants, and the length of retreat. And in a Grief Tending circle we welcome different styles of expression, not just words.

You can find more about upcoming Grief Circles and other Grief Tending events here.

Sarah Pletts is a Grief Tender and Artist who offers workshops in London and online, sharing rituals where grief on all themes is welcome. For more information about Grief Tending see www.griefsupport.org.uk .